The most common treatments available today are called C5 inhibitors and are given by infusion.

C5 inhibitors only address intravascular hemolysis (IVH), not extravascular hemolysis (EVH). This can lead to ongoing hemolysis and lower-than-normal hemoglobin levels.

You may still need red blood cell transfusions

Most treatments require scheduled infusions or hospital and clinic visits, which can cause people to miss out on important moments and activities.

Here's what you can do now

See what's happening with PNH