Living with PNH: real life journeys
.
Brandi's PNH Story
Brandi was diagnosed with PNH in 2016. At first, she felt overwhelmed by her PNH diagnosis and struggled with speaking to her doctors. Since then, she has learned to listen to her body, find her voice, and get the care she needs. Watch her story now.
Zack & Michele: Our Story
Watch Zack share his real-world experiences with PNH in this video testimonial. His mother and caregiver, Michele, gives her perspective on how to assist a loved one in their PNH journey.
Patient and Caregiver Testimonial
Hear from Alvaro, Brandi, Zack, and Michele as they describe their experiences living with PNH or caring for someone with the condition. Discover new and authentic perspectives in this engaging short video.
Your story matters
Each PNH journey offers unique insights that are worth sharing. Like the stories above, your experience can also serve as a guide and inspiration for others who are living with PNH.
Have an inspiring PNH story you'd like to share?
Still have questions about PNH?
PNH, paroxysmal nocturnal hemoglobinuria.