The true impact of PNH can be felt physically and emotionally. Symptoms like fatigue, shortness of breath, and brain fog can become overwhelming obstacles that get in the way of enjoying life.
Understanding PNH and its challenges can help you advocate for yourself and better manage your disease.
Brandi has been living with PNH since 2016. Like many others living with PNH, she felt overwhelmed by her PNH diagnosis and symptoms, especially in the beginning. But she became empowered by her journey and learned how to advocate for herself in managing her disease. Now, she shares her story in this video.
Watch Brandi's Personal Narrative of Hope
Brandi shares what she's learned on her journey:
Listening to her body
Managing symptoms
Speaking up to get the care she needs
Staying positive in her fight